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Half a Heart, Full of Hope

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Do you know...

  • Congenital Heart Defects are the MOST common type of  birth defect.
  • Each year over 1,000,000 babies are born worldwide with a congenital heart defect. 100,000 of them will not live to see their first birthday and thousands more die before they reach adulthood.
  • CHD's affect nearly 40,000 births in the United States per year.
  • At least 15% of CHDs are associated with genetic conditions​.
  • Children who have genetic disorders, such as Down Syndrome, often have congenital heart defects. In fact, half of babies with Down Syndrome have congenital heart defects.
  • Although many children who have congenital heart defects don't need treatment, others will need open heart surgery or possibly a heart transplant.
  • The government only spends a fraction of a penny on medical funding for congenital heart defect research. Twice as many children die from CHDs, than from ALL forms of childhood cancer COMBINED, yet the government funding is 5 times more for childhood cancer than CHDs .
  • ​There are over 40 different types of CHDs, yet little is known about them. In fact there is no known prevention or cure.
  • ​Because of advances in research there has been almost a 30% decline in CHD related deaths in the last decade.

CONGENITAL HEART DEFECT (CHD): a problem in the structure of the heart that is present at birth.

Signs and symptoms depend on the specific type of problem. In many cases there are no symptoms present, in others the symptoms are life threatening. It does not cause chest pain. Complications that can result from heart defects include heart failure.​

Symptoms MAY include:

rapid breathing

bluish skin, lips or fingernails 

poor weight gain

feeling tired